Welcome to the Chronic Kidney Disease Insider Newsletter. If you are living with chronic kidney disease (CKD) on dialysis, have had a kidney transplant or are helping care for someone who is, this newsletter was created for you and your family! The content is meant to keep you and/or a family member up to date on the latest information to help you manage your health now and in the near future in consultation with your physician.
In this month’s CKD Insider:
News from Kidney Organizations
AAKP: Stop the Itch: Understanding & Managing CKD-Associated Pruritus (CKD-aP)
Individuals with Chronic Kidney Diseases (CKD) or those on hemodialysis are at a greater risk of suffering from CKD-aP, a moderate to severe itching directly related to kidney disease. The American Association of Kidney Patients (AAKP) has an entire educational webpage designed to help you understand what it is and how to treat it. If you have been experiencing this the resources they provide can you or your loved one deal with CKD-aP.
June 3rd is National Itch Day. Learn more here.
A Night Out in the City to Benefit Living Organ Donors
On Wednesday, June 5th, the David Atkins Fund and American Kidney Fund (AKF) are hosting a Night Out in the City to Benefit Living Organ Donors. The fundraiser will take place in Pineapple Club, New York, from 6 to 9 PM. The David Atkins Fund, which launched in 2023, supports living donors in the New York Metro Area by covering costs associated with donation that are not otherwise covered, making the donation process smoother for both donor and recipient.
June 5th 6:00- 9:00pm EST. Learn more or register here.
Lyfebulb Transplant Lyfe Support Groups
If you have had a transplant or are considering one, this group meets twice a month and is designed to help people before, during and after a transplant with a safe space to ask questions and get the support you need.
June 11 and June 26th at 6:30pm EST are the next months meetings. Learn more here.
NKF Living Your Best Without Distress Workshop
The National Kidney Foundation (NKF) has created this virtual workshop to help you deal with the stress of living with CKD. You will learn strategies to help you work through and process emotional distress.
June 26th 7:00pm EST sign up here.
AAKP Global Summit on Kidney Disease
Mark your calendars! The 6th Annual Global Summit on Kidney Innovations will be held July 16th-17th. It is a virtual event organized by the American Association of Kidney Patients (AAKP) and George Washington University. Last year, attendees joined from 100 different countries to hear from medical and patient experts in 14 different sessions. The 2024 agenda has not been released yet but will be shared here when available.
July 16 - 17th. Learn more and register here.
Your Fun Tip of the Day!
Listen to Outdoor Music!
It's time to get outside and enjoy the music of summer! Most locations where it is warming up should be starting their outdoor music events. Look in your local paper or online and find out what the schedule is for the season, and put the dates of your favorite bands in your calendar, get some friends together and go out and enjoy the sounds of summer!
TwoPlus Clinical Trial for people with residual kidney function on hemodialysis
What it is: A large multi-location study to determine if 2 hemodialysis sessions per week followed by 3 hemodialysis sessions per week is safe and effective. Previous pilot studies have found this to be safe and effective for people with residual kidney function, but not for those who do not have appreciable residual kidney function. This large trial is designed to compare the effectiveness of personalized, incremental hemodialysis and traditional hemodialysis. You can learn more about the hemodialysis study groups here.
Why it's important to you: If you are on hemodialysis 3 times a week and have residual kidney function, this study could you provide you with an opportunity to learn if two times a week hemodialysis for a certain period of time is possible for you. Overall, this study will help people on hemodialysis, care partners and providers make better decisions about what treatment plan is best for each individual.
News for people with CKD and diabetes not on dialysis
In a study published in the New England Journal of Medicine, Semaglutide, the active ingredient in the drug Ozempic® and Wegovy® was shown to slow chronic kidney disease progression and reduce the incidence of cardiovascular events in patients with Type 2 diabetes and CKD. Ozempic is currently prescribed for Type 2 diabetes to lower blood sugar and Wegovy is prescribed for weight loss.
Novo Nordisk, the pharmaceutical company that developed Ozempic and Wegovy, is planning to seek FDA approval to expand the use of the drug. Further research will need to be done to determine whether there are benefits for patients with kidney disease but without diabetes.
You can read more here.
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