Welcome to the Chronic Kidney Disease Insider Newsletter. If you are living with chronic kidney disease (CKD) on dialysis, have had a kidney transplant or are helping care for someone who is, this newsletter was created for you and your family! The content is meant to keep you and/or a family member up to date on the latest information to help you manage your health now and in the near future in consultation with your physician.
In this month’s CKD Insider:
News from Kidney Organizations
Renal Support Network Virtual Support Group
The Renal Support Network holds a virtual support group twice a month on the fourth Sunday of every month (2:00 pm-3:30 pm PT) and the second Tuesday of every month (2:00 pm-3:30 pm PT).
You can sign up for the support group or any of their other online events here.
You can find all their events, including book clubs, exercise classes, and cooking classes, on their event calendar here.
AAKP Global Summit on Kidney Disease
Mark your calendars! The 6th Annual Global Summit on Kidney Innovations will be held July 16th-17th. It is a virtual event organized by the American Association of Kidney Patients (AAKP) and George Washington University. Last year, attendees joined from 100 different countries to hear from medical and patient experts in 14 different sessions.
July 16 - 17th. Learn more and register here.
The event is virtual. Registration is free and still open. The 2024 Agenda is still not posted online but will be shared here when available.
Your Fun Tip of the Day!
Celebrate July 4th!
Grab the opportunity to celebrate! There are many free activities and fireworks displays that can be found all across the country, and it’s a great time to be outside assuming your local weather is good.
Your plan:
1. Look up on your local community website or in the newsletter when the fireworks are happening and what other activities are out there.
2. Pack some snacks and the amount of water that you typically consume to keep you on track
3. Get friends and family together, join a meetup or other group or go by yourself.
4. Most importantly get out! It quickly becomes a community event with people typically being very welcoming.
Smile, laugh and look up in awe – give yourself that in the moment experience. If you can't make it in person, watch on TV and when its over look out for other similar events that you can enjoy for free!
Happy 4th everyone!
Veterans Affairs Hemodialysis Study
What it is: Veterans Affairs (VA) is conducting a new study for Veterans with Stage 5 CKD called Incremental Hemodialysis for Veterans in the First Year of Dialysis (IncHVets). The study compares traditional three-times-per-week hemodialysis with twice-per-week hemodialysis that is increased to three times per week over the course of the first year. The researchers are looking at long-term kidney function, quality of life, and other health outcomes, including dialysis-related trauma to patients’ organs and vascular access.
Why it’s Important: Each year, about 12,000 Veterans develop ESRD and begin dialysis, accounting for about 10% of all ESRD patients in the United States. For many patients and care partners, starting dialysis can be overwhelming. The investigators in this study would like to determine whether initial twice-per-week hemodialysis is just as effective as three-times-per-week, which may make starting dialysis a bit more manageable. It would also provide significant cost savings and reduce the time spent receiving dialysis.
How to get involved: If you are a Veteran and interested in participating, the trial is being held at sites in California, Connecticut, New York, New Mexico, and Tennessee. Contact information for each site (email and phone number) are found here.
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